Tuesday, 25 September 2018

4.48 Psychosis, by Deafinitely Theatre

Playing in London, between 18th Sept and 13rd Oct 2018 (a week after World Suicide Prevention Day,, on 10th Sept www.iasp.info, and World Mental Health Day on 10th Oct https://www.who.int/campaigns/world-mental-health-day), Deafinitely Theatre possibly picked the best of times to launch their newest production: Psychosis 4.48, (http://www.newdiorama.com/whats-on/448-psychosis).
 
This works for the broadening of mental health awareness in the D/deaf community, as well as creating more D/deaf awareness in the mainstream fields. 
4.48 Psychosis is the last play written by Sarah Kane before she took her own life. The play was staged for the first time in 2000, about 18 months after Kane passed away. Since then the script has reached several theaters around the world, adapted in several languages and variations.
For the first time this play is produced primarily for the D/deaf public, whilst remaining also accessible to the hearing audiences. 
It offers a combination of voice, captions, BSL (British Sign Language) and VV (Visual Vernacular); just how ideally every play should be delivered, for my liking.
With this said, note to be added is that there still are times of abstractness where language is a tumultuous stream of thoughts and emotions. at times meaningful, at times senseless, just the same way the scattered mind often becomes during psychotic episodes.
To contrast the rambling words, the beautiful visual bursting of feelings and emotions expressed in the acting, fully immerse the senses and attention of the spectators. The constant turmoil of emotions is so vividly expressed, whether it is anger, paranoia, frustration, the anguish of the mind can be sensed almost incessantly for the full length of the play.  

Deafinitely Theatre's Director, Paula Garfield, has bravely produced a very innovative version of this play, casting two hearing (Jim Fish, Matt Kyle) and two Deaf (Adam Bassett, Brian Duffy) actors.
Like well-defined yin & yang elements, clearly doubled up by two on stage, we experience the dark and the light forces, the warm and the cold, the passive and the active, and the female and male ones, although there is no absolute gender referencing in this.

There are times when all these characters are really manifesting the natural cacophony of personalities within one same individual as in an altered, anomalous state. It’s even striking seeing a seemingly perfectly paired couple in appearance, with Fish and Bassett on stage, especially when, as if swapping roles, the fine line of differences between the Doctor and the patient momentarily disappear.

Brian Duffy, an award-winning artist, filmmaker, physical and Visual Vernacular performer, offers glimpses of the exceptional bouts of the manic force; that supernatural energy that the simple body almost finds impossible to bear and contain, while the mind is taken over by the shadows of a twisting brain.

From a survivor of psychiatry/ex-patient point of view, I couldn't fail to sense the claustrophobic and oppressive feeling of being locked into that sickly-sterile space; the uneasiness of dealing with often fake-and-emotionally-absent or domineering-hostile members of staff (tip: this can never be a welcomed care attitude that gain success - not generalising either neither here, as many nurses are very caring indeed), and the warm camaraderie of peers, going thought the same ordeal.

There is not a right or wrong interpretation of the play of course. Each viewer will take in what they capture more strongly out of it, with possibly very differing responses and emotions stirred among survivors/patients, mental health professionals, carers, family members and/or friend of a patient. Something tells me that possibly everyone fits in one or more of these short categories these days...
Massive congratulations to Deafinitely Theatre for touching such a delicate subject! Especially since mental illness is still covered by stigma, ignorance and neglect in both, the D/deaf and hearing worlds alike. Also of relevant importance is the necessary action towards breaking those barriers where men, often more than women, are so reluctant to disclose, deal, or ask for help, when experiencing emotional anguish and turmoil and life difficulties.
A series of post-show Talks & Discussions have been planned, hosted by Deafinitely Theatre Director Paula Garfield, joined by academics and professionals in the deaf mental health field (FREE, BSL Interpreted events www.eventbrite.co.uk/o/deafinitely-theatre-10641135155).

For more information about Deafinitely Theatre 4.48 Psychosis www.deafinitelytheatre.co.uk/blog/the-448-production
DEAFNESS, COMMUNICATION & MENTAL HEALTH
There are many reasons that may trigger mental uneasiness in anyone, such as anxiety, depression and stress. It's fundamental that everyone takes the right precautions to take care of his or her wellbeing and mental health, just as we care about our physical health. Better seek for appropriate help when required, as there are plenty of gentle ways to take of ourselves and shift these phases, just by being more mindful of our lifestyle.
However more profound life experiences marked by severe trauma, abuse or neglect, if not dealt with the adequate care, can lead to signs and development of mental illness.
Some mental illness seems to be socially produced, mostly due to the inequalities of life conditions that people experience. There are also a myriad of symptoms masquerading and often being (mis)diagnosed as mental illnesses, when the root cause might have an emotional, physical or spiritual origin. It is not just "all in your head".Drugs and alcohol abuse can also be triggers. Some people forget that prescribed medications are also drugs. With the play touching the delicate topic of suicide and self-harm, it is worth considering that very often the original cause of some difficulties could be the side effect of some medications. Majority of psychiatric medications also affect the brain, having very diverse responses in different people, and over prolonged periods of times. Please consider expanding this important link www.april.org.uk
People generally ignore or downside the importance of hearing in ageing and how it affects people wellbeing. Apparently there's links of people manifesting signs of dementia as their hearing deteriorates while ageing. Isn’t this alarming?Apparently by the age of 70, 70% of people have hearing loss. See www.scie.org.uk/dementia/living-with-dementia/sensory-loss/hearing-loss.asp and www.bmj.com/content/350/bmj.h3029/rr No wonders if many elderly people live in isolation, as often it's due also to their difficulties in hearing.
Other than age related, deafness may be originated from a multitude of causes. It can be either congenital, hereditary or acquired through life in an accident or due to an illness. Then we have the Deaf and the deaf. Anyone wanting to expand that (why not?), here there’s some dedicated description for it  www.bbc.co.uk/ouch/opinion/d_or_d_whos_deaf_and_whos_deaf.shtml The rest is all variable uncertainties, in my opinion ;)
There certainly is a higher incidence of mental health distress suffered by D/deaf people of any age, as in many occasions these end up living in abusive relationships, experiencing exclusion, isolation and discrimination. The language/communication barriers generally cause these issues, especially when adjustments necessary in schools or work places are not taken into account.
Sadly bullying and discrimination are often experienced since younger ages, but this can either be avoided and prevented. NDCS (National Deaf Children’s Society) is a good place to start to contribute towards a better World for those perhaps needing some deaf awareness www.ndcs.org.uk/family_support/communication/deaf_awareness/ 
In an ideal world everyone would be a fluent signer, not just to be able to sign with a Deaf person, but really for the beauty of it, as it is a fully expressive form of communication. Among other things, the advantages of using a signed language, rather than speaking, offer the chances to communicate in: noisy places, even far apart across a large rooms; through windows; underwater; while eating/with a full mouth and more!
It is fundamental that everyone does his or her part in taking action towards improving everyday life. It’s not only going to benefit our own wellbeing; society at large can function better, when fair awareness and responsibilities are efficiently taken into account.
 
Last December the United Nations declared 23 September International Day of Sign Languages wfdeaf.org/news/un-23-sept-as-international-day-of-sign-languages/... so officially this year International Day of Sign Languages was celebrated. Just passed, but it's always time for non-signers to learn some fingerspelling, just to get started for example!
LINKS AND INFO
To understand more about Psychosis see: www.ispsuk.org If you are feeling suicidal or know of someone who needs help, browse Help to find a crisis centre anywhere in the world www.iasp.info/resources/Crisis_Centres/
The Samaritans offer a round the clock, 24 hours a day, 365 days a year port of support, available via phone, e-mail and slow mail and at local branches. If you need a response immediately, it's best to call them on the phone (FREE to call). You don't have to be suicidal to call for a chat www.samaritans.org/how-we-can-help-you
NHS 111 can also be useful for emergencies of various natures. It also offers a BSL interpreter service and the typetalk or textphone facility www.nhs.uk/using-the-nhs/nhs-services/urgent-and-emergency-care/nhs-111/
SignHealth psychological therapy has a dedicated service for BSL users www.signhealth.org.uk/our-projects/psychological-therapies-service/
Please, bear with me if you find any grammar or content inaccuracy. There certainly is much more to say about both, mental health and deafness. Not intending to lecture anyone here, yet more awareness is needed and the topic could be discussed more. Wishing to send some hope and support to those that may be feeling vulnerable or seeking for help. We are never alone. Thanks for reading!


Monday, 3 September 2018

September Newsletter

Dear Friends,
 
It is with profound sadness that we share the news of the passing of two dear friends that have contributed to FEEL over the years, wishing to send our condolence to all their friends and family members.
 
Kevin Zdaniecki (1952-2018) (Cons. Drs.C Psychologist AFBPS Chartered Member BPS DCP) led a talk for a FEEL event at Kingsley Hall in Nov 2014 and supported FEEL work ever since. Kevin's funeral will take place on Tue 11th September 2018 at 9:30 am at the City of London Cemetery and Crematorium, Aldersbrook Rd, Manor Park, London E12 5DQ.
 
The brilliant Jazzman John Clarke (1948-2018) was one of FEEL favorite MC at several Poetry events we shared some real memorable times with. A legendary figure in many poetry circuits around London, Jazzman is being remembered and celebrated widely at some of the spots where he was seen performing regularly. 

Here to follow a few tributes organised for him so far, while the funeral still has to be arranged:
- Tue 4 Sept 7pm, Eastbeat, Kingsley Hall, Powis Road, E3 3HJ London
- Thu 6 Sept 7:30-10pm Earl of Chatham Pub, 15 Thomas St Woolwich, London SE18 6HU
- Fri 7 Sept 19:30-23:30; Bingo Master's Breakout, The Betsey Trotwood, 56 Farringdon Road EC1R 3BL London
- Sat 27 Oct, 5-10:30pm, Altogether Elsewhere, Kingsley Hall, Powis Road, E3 3HJ London. 
Please contact Vyvy on Vyvyemail@gmail.com if willing to contribute to the special zine dedicated to John being collected together for this event (deadline for submissions 15 Sept. More info at the bottom of the page).

Our monthly FEEL meeting for September will be taking place at LARC on Monday 17th, 6:30-8:30pm. Do join us if you can. More events and news listing to follow. 


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 "A Disorder for Everyone!"
Challenging the culture of psychiatric diagnosis
Thu 6 Sept 9am – 5pm, Amnesty International 25 New Inn Yard London EC2A 3EAContributors for the 10th event of AD4E will include Dr Lucy Johnstone, Dr Jacqui Dillon, Prof John Read, Clare Shaw, Dr Akima Thomas, Laura Delano, Jo Watson & Nollaig McSweeney.
To book: www.eventbrite.co.uk/e/a-disorder-for-everyone-challenging-the-culture-of-psychiatric-diagnosis-and-exploring-trauma-tickets-41295898143
Twitter: @dropthedisorder;
AD4E website: www.adisorder4everyone.com;
www.jowatsonpsychotherapy.co.uk


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Fight Disability Discrimination on Public Transport - Crowdfund by a group of Paralympians and disability rights activists who are raising the money to set up a legal fund to help disabled people bring court cases to challenge discrimination they face on public transport.
Pledge and share! 24 days to go
www.crowdjustice.com/case/fight-disability-discrimination/

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NSUN London Digital Leaders Lab
NSUN invites representatives from user-led member groups across London to a free networking, sharing and design programme on 4th, 5th and 6th September 2018.210 Borough High Street London SE1 1JX. To book and more info: E: info@nsun.org.uk Ph. 020 7820 8982
www.eventbrite.com/e/nsun-london-digital-leaders-lab-tickets-49032249779

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Bobby Baker's Great & Tiny War
Friday 7 September to Friday 9 November, 133 Sidney Grove, Newcastle upon Tyne
Great &Tiny War is an ingenious, immersive, multimedia audio-guided installation set to transform a house in Newcastle. Commissioned by 14-18 NOW, this major new work is peppered with happenings of unpredictable proportions. It's inspired by real stories, passed down through Bobby Baker's family and shaped by the domestic and emotional labour of conflicts. Book tickets here: wunderbar.org.uk/gtw/great-tiny-war/

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News from Nowhere Club
‘I Ain't F***ing Doing That!’ Working with People No One Wants to Work With. Speaker: Charlie Weinberg
Saturday 8th Sept, The Epicentre, West St E11 4LJCharlie is Executive Director of Safe Ground, the award winning national charity using arts education and therapeutic group work to challenge people in prison, professionals and policy makers to do relationships differently. She will talk about how working with people who struggle to trust is a lifetime's mission.Entry only from 7.30pm Buffet, 8pm Talk. Free entry / donations welcome / raffle / all welcome / no need to book Enquiries 0208 555 5248

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NETWORK MEETING London Hearing Voices Network incorporating Paranoia & Beliefs Network
Monday 10th Sept, 2pm - 5pm Conway Hall 25 Red Lion Square London WC1R 4RLSpeaker: Roz Austin, Research Associate at York University and founder of the Educational Voice Hearing Network based at St Catherine's College, Oxford. Roz will speak about 'Emily's Voices' (available to buy from Amazon).Network Meetings are primarily a chance for Hearing Voices Group Facilitators to meet other facilitators, share successes and gain support around challenges. Meetings are open to group members too, so please print the details and hand them round at your Hearing Voices Group meetings. We are happy to welcome people not currently involved with a group, but please contact LHVN (email: lhvn@mindincamden.org.uk or call: 020 7241 8978) first as a courtesy.

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Mental Wealth Festival
Mon 10th & Tue 11th September. Happening between City Lit, The National Gallery and Houses of Parliament. www.mentalwealthfestival.co.uk/

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Survivor's Poetry (every second Thursday of the month)
Thu 13th Sept, 8 – 10.30pm. Arrive 7.30pm to sign up for floorspots (1.50 floorspots / 2.50 concessions / 3.50 the full ticket)The Poetry Cafe, 22 Betterton St, Covent Garden, London WC2H 9BXAn evening of Poetry and song. MC George Tahta, Featured Guest Colin Hambrook
Facebook: Survivor's Poetry Gigs

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Sanity, Madness and the Family, Season 2
Fridays (2nd or 3rd - see website) Aug - Dec 2018 at The Philadelphia Association, 4 Marty's Yard, 17 Hampstead High Street, London NW3 1QW
Doors open at 6:30pm; Film starts at 7:15pm, followed by group discussion. Free entry.
PH: 0207 794 2652; office@philadelphia-association.org.uk; W: www.philadelphia-association.com/events

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Institute of Critical Psychiatry – Inaugural Conference
Monday 17 September. Buckingham House, Murray Edwards College, Cambridge
institute.criticalpsychiatry.org.uk/Registration.pdfhttp://asylummagazine.org/event/institute-of-critical-psychiatry-inaugural-conference/

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57th Maudsley Debate: ECT by Institute of Psychiatry, Psychology & Neuroscience
‘This house believes that electroconvulsive therapy (ECT) has no place in modern medicine.”
Wed, 19 Sept 6:30-7:30pm, Wolfson Lecture Theatre Institute of Psychiatry, Psychology & Neuroscience, King's College London 16 De Crespigny Park London SE5 8AF
www.eventbrite.co.uk/e/57th-maudsley-debate-ect-tickets-49731741979?aff=ebdssbdestsearch

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Funzing Talks: Mental Illness as Shamanic Initiation
Wed 19 Sept 7-9 pm BBB19-23 Bethnal Green Road, Shoreditch, London, E1 6LA (talk starts at 7:30pm)This talk by Jez Hughes ( teacher and practitioner of Shamanism) will explore whether it is possible, or beneficial, to approach mental illness from a psycho spiritual perspective in a society that doesn’t value the spiritual conditions that give rise to sickness and is stuck in bio-chemical causation model.
uk.funzing.com/funz/funzing-talks-mental-illness-as-shamanic-initiation-19118/?utm_source=FB_Event_UK&utm_medium=6107268288086&utm_campaign=6107268285486&utm_content=2018_08_15

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WORKSHOP: Deconstructing Borderline Personality Disorder, by Mind in Camden
Tuesday, 25 September 10am - 4pm Diorama Arts Centre 201 Drummond Street, Regents Place, NW1 3FE London
Led by Flick Grey is a Mad Studies academic, Intentional Peer Support facilitator, Open Dialogue practitioner.
More info and tickets here: www.eventbrite.co.uk/e/deconstructing-borderline-personality-disorder-tickets-48327964242

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Inside - Short Film 2018 - FUNDING
Is it time to listen to the Voices? A film about psychosis by someone who's been there.INSIDE is the second part of Dolly Sen´s Mental Health awareness trilogy. Dolly is a filmmaker and artist with a unique perspective and powerful message about psychosis. With some money already raised we are looking for funding to cover costs to complete the film www.indiegogo.com/projects/inside-short-film-2018#/

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Rachel Rowan Olive: coloured by austerityThis showcase was published as part of Dolly Sen’s guest editorship on Disability Arts Online.
disabilityarts.online/magazine/showcase/rachel-rowan-olive-coloured-by-austerity/

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CALLING OUT: Everyday Psych Victims Project
A new platform has been created for Survivors for sharing personal negative psychiatric experiences online.Experiences can be shared anonymously at PsychVictims.com

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NotTheAnarchistBookfair 2018
The London Anarchist Bookfair has been a crucial fixture in the anarchist calendar since 1983. This year the bookfair is on what -we hope- a very brief hiatus. To go some small way to filling the gap, Freedom Press and Housmans Radical Booksellers have got together to organise a decentralised anarchist festival on the 20th - 21st of October, and we'd like you to get involved!#nottheanarchistbookfair crew, @anarchistfestival (Twitter) OR anarchistfestival@riseup.net (email) FB: www.facebook.com/events/226899004670917/

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NSUN Members Event and Annual General Meeting: Theme 'The Future of Peer Support'
Thursday 25 October 10am-10.15am arrival 4.30pm finish. The Roundhouse, Roundhouse Road, Pride Park, Derby DE24 8JE
If would like to secure your place please email info@nsun.org.uk with the subject title Members Event 25.10.18 booking
www.nsun.org.uk/Event/nsun-agm-and-members-event-2018-future-of-peer-support

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Open Dialogue Event
25th October 9.30am to 4.45pm, Green Rooms Hotel, 13-27 Station road, Wood Green, London, N22 6UW. Tea, coffee and lunch will be provided! Places will be offered and secured on a first come first served basis. Closing date for applications: Friday 13th September if wishing to register to attend the OD Event at a cost of £10. Email to: camilla.giachero@nhs.net & steven.livingstone1@nhs.net

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'Altogether Elsewhere'- A Memorial Tribute Event for Jazzman John
Saturday, 27 October 5-10:30pm, Kingsley Hall Community Centre. The Title 'Altogether Elsewhere' comes from a recent book of poems featuring Jazzman John: sampsonlow.co/2017/01/26/altogether-elsewhere-jazzman-john-robert-clarke/

Doors open: 5pm (please come and bring some food and drink to share before hand and take a moment to write in the journal in memory of John - will be stored at Kingsley Hall) Tribute performances: start before 7pm (see below for performers) Event ends: 10:30pm

VIDEOS & FOOD: If you are able to bring some food or drinks to share or have any videos you'd like shown on the night please contact Noel O'Halloran at mindchangestherapy@gmail.com or www.facebook.com/noel.ohalloran
PERFORMERS: If you are interested in performing during the event please contact Phillip Goodman at www.facebook.com/phillip.r.goodman or email him at goodmanphillip@googlemail.com or you can contact Marina Young at www.facebook.com/marina.young.96
TRIBUTE ZINE: If you would like to contribute some poetry, words, and or images for inclusion in the free zine which will be created in honor of Jazzman John please contact Vyvy on Vyvyemail@gmail.com

Saturday, 11 August 2018

Alternative remedies to conventional psychiatry threatments

Native, Ayurveda and Chinese Medicine
Every continent around the world has some traditional healing practices passed from generation to generations. Native traditional healing in its various forms like Shamanism and Herbalism have been used and tested for thousands of years and are the basis of many other healing therapies. 
There is evidence of Ayurveda and Chinese Medicine methods in old text books of at least 5.000 year ago, which usually involve the use of medicinal herbs, healing touch and acupressure and/or acupuncture. Usually a strong and immediate response is perceived by the patient.
Acupressure an acupuncture for example, are very effective in bringing balance for a large range of complains: physical, mental and emotional issues. 
It works by If applied more frequently in acute states (like several times per day), helps reducing the body exit an acute phase of inflammation. The person regains balance and control much quicker, avoiding the dramas and traumas of weeks of hospitalisation, the side effects of drugs and the numbness.

 
Holistic approaches and remedies 
There is a vast choice of therapies that have developed over the years under various names, however at the basis of these, there is our capacity to heal ourselves and heal others, considering the extraordinary power of the body to heal and regenerating, given the right time and conditions.
Some of the holistic therapies might seem subtle to some people, however when used properly they have tremendous and powerful effects: from pure essential oils, Bach Flowers, Homeopathy, massage (specially Osteopathy, cranio-sacral, reflexology, Shiatsu), EFT (emotional Freedom Technique), Hypnosis, Energy healing (Reiki, Bioenergy, Crystals) and Oriental approaches, many results can be experiences with no side effects when proper guidelines are followed.

Holistic, Functional, Integrative, Energy Medicine: these are the real way forward to positively help a person that is calling for help. Considering each individual in his or her uniqueness, not just a body with a mental illness label is the key to resolve key issues from the roots.


Nutrition
What we eat and put in our body plays an important role in our overall wellbeing.
The food industry only cares about selling products. So even food labelled "healthy" often only mask items full of sugar, GMOs and refined products with no nutritional value, even if they seem to taste good. Your health is your responsibility and being responsible in what we consume is a good starting point. Eliminating processed foods and stimulants like alcohol, caffeinated drinks, or limiting these if at first is difficult to eliminate completely, is essential to regain real control of our health and life.

Eating right and well is paramount; fresh and natural ingredients are what the body needs and recognises the easiest. 
Ever heard about the gut-brain axis? kellybroganmd.com/5-rules-for-eating-away-your-depression/
There are lots of studies and research that testify about the influence of nutrition to our health. 
The book “The Wheat Belly” talks about consumption of wheat increases inflammation in the body and the likely aggravation/manifestation of schizophrenia symptoms (chapter 4: “Bread is my Crack”).
Nutrition supplementation can provide an effective help, especially Omega 3, B Vitamins and magnesium, just to name a few. However what we need to remember is that we are all individuals with different needs: always seek for appropriate advice, pls. 
GPs and many other MDs are not trained in nutrition generally, unless they consider it relevant. Luckily more and more a waking up to the limitation of conventional medicine and do their further studies.


Abstaining from drugs & alcohol 
Some people avoid any medical advice while suffering mental difficulties and self-medicate using alcohol and or illegal drugs. Good if it works for them, although it generally it's only an immediate relief that cannot work for long without causing addictions, debt and more severe problems within the self and close relationships. It is well known about the toxic effects of either alcohol and any drug (prescribed or recreational alike) on the long term.


Crisis Houses 
Soteria style crisis houses have been experimented for many decades in Europe and the States. These seem to be a safer and gentle space for people that are struggling with crisis symptoms, helping them regain stability rather than being forcibly treated and detained against own will in a psychiatric ward.


The Open Dialogue
RD Laing is often considered the originator of the open dialogue approach, following the Philadelphia Association experiment held at Kingsley Hall in the 60s
It looks like the ability of the Doctor to almost swap places with his patients was the chance for the patient to finding themselves.
Open Dialogue has been used successfully in Western Lapland, Finland for quite some time, allowing people to be treated at home, with little or no medication and the support of close friends and family, as the patient prefer.
We don’t seem to know the actual efficacy, nor there is enough evidence, being not broadly available outside of Finland. What is certain is that talking might be of help more than being focefully


Changing lifestyle/habits are the essential steps to get us out of any rattrap.From loosing weight, follow healthier eating diets, practicing regular physical activity, habit changes may surely require some very difficult work, understand ourselves better, seek for useful help, etc. Takes lots of motivation but we can do it!

Thursday, 2 August 2018

August newsletter & Global Disability Summit

Dear Friends,

After about one year since the United Nations found the UK in severe systematic violations of human rights www.thecanary.co/uk/2017/08/24/breaking-un-just-accused-tories-creating-human-catastrophe-uk/, last week the first ever Global Disability Summit was co-hosted by the UK Government, the International Disability Alliance and the Government of Kenya. A Civil Society Statement has been released www.internationaldisabilityalliance.org/cs-statement

A series of responses circulated before, during and after the Global Summit took place.

An open letter was sent by DPAC and allies to some of the Speakers dpac.uk.net/2018/07/open-letter-to-some-of-those-attending-the-global-summit/

Among others, the LGBTQI organisation Regard condemned the choice of the UK Gov. partnering with the Kenya Gov. for the Global Summit, since it is considered illegal to be gay in Kenya and abuses are common place regard.org.uk/global-disability-summit/

On 22nd July Disabled People Against Cuts (DPAC) & Reclaiming Our Futures Alliance (ROFA), hosted the International Deaf and Disabled People’s Solidarity Summit in East London, to highlight the hypocrisy of the UK government’s decision to co-host the Global Summit www.disabledgo.com/blog/2018/07/rival-international-summit-aims-to-highlight-governments-global-hypocrisy/




DPAC also organised the Festival of Resistance, with allies, gathering in a peaceful protest, with banners, music and poetry, in front of Here East, where the Summit was taking place on 24 July www.disabilitynewsservice.com/global-disability-summit-dpacs-protest-festival-highlights-government-hypocrisy/

The UK government still has to provide a detailed response to the UN Committee’s over 80 recommendations: not exactly a World leader on disability, as Labour MP for Battersea, Marsha de Cordova reports www.huffingtonpost.co.uk/entry/global-disability-summit_uk_5b56ce5ee4b0b15aba91dc48?17

More on the Global Disability Summit:

 
Please find here the notes shared by NSUN representatives after their meeting with the MHA Review Chair and Vice Chairs, that took place last month (13/07). People are now invited to send suggestions for each response that NSUN will be sending to the leaders of the main political parties, the All Party Parliamentary Groups (APPGs) and replying further to the Review Chair and Vice Chairs. Questions can be found at the bottom of the notes in the link. Send replies/suggestions to Dorothy Gould (gould.dorothy@gmail.com), copying it to Sarah Yiannoullou also (sarah.yiannoullou@nsun.org.uk) by Thu 16 August 2018
 
Next monthly FEEL meeting is taking place on Monday 20th August at LARC.
Do join us and find more info/event below, starting with the MHRN docu/film later today.

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SOLIDARITEA AT THE FIELD, 
by MHRN:
Thu 3rd August, 7pm at The Field, 385 Queen's Road, New Cross, SE14 5HD

Join the film screening: 
"Hands2Mouth: Caring for claimants on Universal Credits", followed by a discussion

Facebook : www.facebook.com/MHResist/
website : www.mentalhealthresistance.org
email : hello@mentalhealthresistance.org









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Universal Credit – how is it for you? 
Evidence needed for the SSAC’s consultation
Inclusion London is sending written evidence to the Social Security Advisory Committee’s consultation on proposals to move all people claiming working age income-related benefits to Universal Credit (UC)
dpac.uk.net/2018/07/universal-credit-how-is-it-for-you-evidence-needed-for-the-ssacs-consultation/

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UN Rapporteur seeks views on UK poverty and human rights.
The United Nations Special Rapporteur on extreme poverty and human rights, Professor Philip Alston, will undertake an official visit to the United Kingdom of Great Britain and Northern Ireland from 6 to 16 November 2018 at the invitation of the UK Government. His visit will focus, in accordance with his mandate, on the interlinkages between poverty and the realisation of human rights in the United Kingdom. Written submissions can be sent until Friday 14 September at 18:00 www.ohchr.org/EN/Issues/Poverty/Pages/CallforinputUK.aspxNational 

Public Survey on Ethnic Inequalities and Severe Mental Illness: www.surveymonkey.co.uk/r/synergipublicsurvey

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Survivor's Poetry (every second Thursday of the month)
Thu 9th Aug 8– 10.30pm. Arrive 7.30pm to sign up for floorspots (1.50 floorspots / 2.50 concessions / 3.50 the full ticket)The Poetry Cafe, 22 Betterton St, Covent Garden, London WC2H 9BX
An evening of Poetry and song. MC Dave Russell. Featuring Richard Downes.
Survivors' Poetry was established in 1991 and holds a space unreservedly for all adult Survivors to share their material without censorship with a very supportive audience, most of whom are published poets themselves. It's a very special night and it can be extremely empowering to share your poem/s with people who all 'get'you, so come on down and try it out!'
Facebook: Survivor's Poetry Gigs
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One in Four: Mental Illness Examined Through Art
by artists Laura Greenway and Carlie Simpkin
14 - 18 August, 12-6pm, Lewisham Arthouse, 140 Lewisham Way, London, SE14 6PD - Free entry
The show provides an intimate look into the lives of those affected by psychiatric disorders, and aims to start a much needed and essential conversation about mental illness. disabilityarts.online/events/laura-greenway-carlie-simpkin-present-one-four-mental-illness-examined-art-lewisham-arthouse-london/
 
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4.48 psychosis, written by Sarah Kane
18th Sept - 13th Oct, New Diorama Theatre, 15-16 Triton St, London, NW1 3BF
Also at Derby Theatre on 19th and 20th October 2018
Award-winning Deafinitely Theatre bring its celebrated bilingual approach to Sarah Kane’s lyrical and haunting final play about mental health. Directed by Paula Garfield, 4.48 Psychosis is performed in British Sign Language and spoken English for the very first time www.deafinitelytheatre.co.uk/Event/448-psychosis
 
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The Unveiling of a new Gravestone, by the William Blake Society 
Sunday 12 August 2018 at 3 pm Bunhill Fields, 38 City Road London EC1Y 1AU
Also share a pic-nic and poetry with the William Blake Congregation from 12noon
 
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Maastricht World Survey On Antipsychotic Medication Withdrawal
Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? (For a list of antipsychotics, also known as neuroleptics or major tranquillisers, click here.) And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Any questions? Please contact will.hall@maastrichtuniversity.nl, +1 (413) 210-2803
 
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Open access to a full menu of services: 
Public submission to the Mental Health Inquiry (Petition)
 
Wellbeing Manifesto for Aotearoa New Zealand
 
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Alternatives to detention/sectioning under the Mental Health Act 1983.
Can you help with suggestions? If you are able to help, please can you send information to Dorothy Gould at gould.dorothy@gmail.com. 
 
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Forced Psychiatry Call for Submissions to a New Anthology!
Genres accepted are: Essays, personal essays, poetry, fiction, memoir, dramatic writing, mixed, experimental, short forms, prose poem. Submissions open from August 1, 2018 until January 31, 2019. Publishing in the summer of 2019. forcedpsychiatry.com/wp/
 

Friday, 13 July 2018

July Newsletter

Dear Friends,

Following Dorothy Gould, NSUN consultant, visit to our June meeting, we have been sent copies of the documents that were discussed: Mental Health Law in the UK & Letter re MHA Review for party political leads APPGS and Review chair and vice chairs.
Dorothy is now collecting examples of alternatives to detention/sectioning. For more info on how to help

In June we also discussed about organising an event to raise more awareness on the MH Act review and the CRDP. There might have been good news with the 'Seni's law' approval to restrict use of force against mental health patients https://www.independent.co.uk/news/uk/politics/senis-law-olaseni-lewis-mental-health-uk-government-mps-patients-a8435161.html
However there are still atrocious methodologies practiced around the world and awareness/action are required. No wonder patients often build up anger, frustration and in some cases aggression. 
How have they been treated in the first place?  
Spain is calling for the end of physical restrain (not only there) http://asylummagazine.org/news/campaigning-to-end-physical-restraint-in-spain/
In Massachusetts, U.S., autistic people are treated with electronic shock 'therapy' 
- Hana Madness talks about Indonesia's chained schizophrenics

During our meeting in April we shared and discussed requirements of the Equality Act 2014 from a SU perspective. Those points were presented at a recent QCC consultation and we are now looking forward to hear the outcomes, since we've asked the Trust to update us.
We're meeting next Mon 16 July 6:30-8:30 @ LARC for our monthly gathering. Do come along if you can and remember to keep well hydrated during these high temperatures, especially if taking medications.


Other News & Dates for your diary: 


CRAZYWISE: film screening & discussion
​Organised by​ Mind in Camden ​
Wed 18 July Doors: 6.00pm​.​ Screening: 6.30pm​.​Bar Interval: 8.00pm​.​ Discussion: 8.30pm
Kennedy Lecture Theatre UCL Institute of Child Health; 30 Guildford Street WC1N 1EH London
The discussion chaired by Akiko Hart (Hearing Voices Project Manager, Mind in Camden)​,​Panel to include: Jez Hughes (Shamanic healer & teacher)Mohammed Abouelleil Rashed (Philosophy lecturer & researcher)​,​Satyin Taylor (NHS Spiritual Care/Chaplain)​,​Natalie Tobert (Medical Anthropologist & author).  £12 waged, £7 unwaged (you can pay cash on the door)

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International Deaf and Disabled People’s Solidarity Summit, by Disabled People Against Cuts
Sun 22 July 11:00 – 17:30 Old Town Hall 29 Broadway London E15 4BQ
DPAC are holding an International Deaf and Disabled People’s Solidarity Summit that seeks to explore issues relating to our shared struggles against oppression, resistance and international solidarity

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Global Disability Summit
24 July 2018 Queen Elizabeth Olympic Park London
the UK Department for International Development (UK DFID), along with co-hosts the International Disability Alliance and the Government of Kenya will host the first-ever Global Disability Summit in London, UK.

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Talking Sense - London Evening Hearing Voices Group
The group meets at 7-8.30pm on the 1st and 3rd Wednesday of every month in a private community hub in the Canvas Cafe 42 Hanbury St, London, E1 5JL http://www.talking-sense.co.uk/

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Thai Boxing Fighters Academy (TBFA) AGM
Monday 6th August, 7-8pm, 117 Garrett Centre, Mansford St London E2 6LX
TBFA train every Monday and Friday, from 7 pm to 8:30 pm, combining Muay Thai Boxing and the support of people experiencing mental health issues. The Academy is also accessible to people that don’t experience any form of mental health problem. E-mail: thaiboxingfightersacademy@yahoo.co.uk  

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The Unveiling of a new Gravestone
After almost two centuries since William Blake passed away a new gravestone will be installed in the actual place of burial. Free event, just turn up.
Sunday 12 August 2018 at 3 pm Bunhill Fields, 38 City Road London EC1Y 1AU http://www.blakesociety.org/events/

Join also the Blake DeathDay pic-nic and poetry reading with the Blake Congregation on the same spot from 1pm

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The Voices in My Head (Available on iplayer for 4 months)
Documentary using audio reconstruction to take viewers in to the world of three people who hear voices as a result of mental illness. Around 1 in 10 adults hear voices in their heads as a result of a number of mental illnesses, including schizophrenia.

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Consultations - Researches - Participation


Section 136 – partners and places needed - Dolly Sen

Pick Me Up (and hold me tight) by ZU-UK

Participatory research: real or imagined - by Diana Rose

Alternatives to detention/sectioning under the MH Act 1983. Can you help with suggestions?

Safety and security arrangements in high security psychiatric hospitals

The Women's Mental Health Network invites you to Turn Up The Volume - CONSULTATION https://womensmentalhealthnetwork.com/consultation/

An international survey of lived experience/user/survivor activists/advocates

...dulcis in fundus: A Simple Guide to Co-Production